Massive Prayers Needed

[osutuba]

The OSUTuba family is in need of a LOT of prayers over the next few days. I ask that you forward this message to anyone and everyone that you can in any way possible.

Our oldest son drowned Saturday afternoon. We were setting up for his birthday party when he got out of sight while he was outside. When I rescued him from the water, his lips were blue and fluid was bubbled up out of his nose. My mother-in law, who is a nurse, and the paramedics had to work really hard to resuscitate him. They got him back, but it took a long time.

He is now in the PICU at the NE Medical Center in Concord, NC (Jeff Gordon Children's Hospital). His vitals are stable, but the next several days are going to be crucial to how fully he recovers (CT Scans, Neurology Tests, etc.).

Please keep us in your prayers. I'll try to post updates when I can.

[WyomingOSUAlum]

Here comes the understatement of the year: That was a CLOSE one.

Prayers? No problem.

[osutuba]

Here comes the understatement of the year: That was a CLOSE one.

Prayers? No problem.
We're not out of the woods yet, but yes, it was very close.

[snuffy]

Prayers for your son and your family.

[osutuba]

Thanks snuffy

[JimBob]

Prayers sent.

[osutuba]

Just FYI, there will be a CT Scan tomorrow morning. There may also be an EEG done that day, but I am not sure as of yet. If those 2 are fine, then we can can most likely be assured of a near-full recovery since everything else appears to be going well.

[BigBadBen]

Im so sorry this happened.

Your family is in my prayers.


This happened to one of my nephews when he was about 4. He was pretty much gone, but my brother did cpr & recussitated him.

Scary stuff.

[PokesFanatic]

Prayers sent. That is absolutely terrifying. I will continue to pray for a 100% recovery.

[osutuba]

Did he fully recover, Ben?

I just found out recently from one of the paramedics that from the time of they got the call to the time they got to the hospital, 40 minutes passed. Throw on top of that the time he was in the water and the time they were in the hospital without him having a pulse, and he was gone for quite a while. That's what scares the hell out of me.

[OSUFan]

Oh, my. My thoughts and prayers are with you.

[osutuba]

My wife was in there with her mom a moment ago, he was responding to her voice and touch and his pupils were reacting to stimulus. They sedated him further so he could rest. Right now, that is what he needs.

All these little things are encouraging. We'll know more in the morning, obviously. I'll most likely stay the night here in the PICU and post something new tomorrow. I will also very likely stay online here in the Waiting Room through the night, though, so I can keep up with the responses.

[osujane]

Thoughts and prayers being sent your way. God bless the Tuba family. Take care.

[pistolpete2002]

I'm so sorry to hear that. Prayers from my family to yours. I hope and prayer that everything will be ok.

[Verb]

I will pray very hard. I just got in from Vegas, and never imagined logging on the board to find something like this. I'll be checking in first thing in the morning to see how things are going, and I'll be thinking about you and Erin all the time till then.

[osutuba]

Thanks, all. I was in there with him and he is sleeping peacefully. They said he has pneumonia (expected) and took a sample while I was in there. They said he won't be off the ventilator until that clears up, which could be several days. He's also running a slight fever (101), most likely as a result of the pneumonia. The nurses all seem pretty encouraged by what they have seen so far in his recovery. What is unseen, however ...

[PokesFanatic]

Let's not forget the resiliency of young children and the fact that miracles happen every day...

[BigBadBen]

Yes, he was able to make a full recovery.

I pray your little guy will as well.

[osutuba]

Let's not forget the resiliency of young children and the fact that miracles happen every day...
He's our little miracle already in that we were not expected to have kids when we found out we were expecting him. I prayed hard in the ER waiting room for God to give us yet another miracle. So far, so good.

[osutuba]

Yes, he was able to make a full recovery.

I pray your little guy will as well.
Thanks, Ben. That is encouraging to hear. It only helps to strengthen my faith.

[FloridaPoke]

Prayers sent........I am no doctor, but common sense tells me a slight fever is a good thing.

[CowboyJD]

Prayers sent.

[Erick]

Wow, not everyone could have kept a cool head while something that traumatic is happening. I believe God was with you then and I will pray that he continues to be with you and your family.

[MemphisPoke]

I second that thought about young kids above Tuba. The Lord seems to watch out for them.

Prayers are with you and your family.

Keep us informed.

[barryrules]

Tons of prayers being sent Tuba!!!!

[osujane]

Checking in to see how little Tuba is doing today. Still praying and will continue.

May I ask how old he is?

Take care - praying for a full recovery - as well as peace and optimism for your family while you wait.

[jakeman]

Prayers sent.

[AnniePokely]

prayers sent

[osutuba]

Jane, Aidan turns 2 this Thursday.

Here is an update of what we have so far:

Aidan's vitals continue to improve, but the concern right now is over his brain, as it was without oxygen for quite some time. There is a CT Scan scheduled for 11AM. Please concentrate your prayers on healing his brain; we really want him to come through.

[barryrules]

Prayers will be sent at 11am your time for little Aidan's brain to be just fine!

[osutuba]

Thank you so much, Jennifer.

There are moments where I am numb to everything and then I am completely overcome. Erin is extermely distraught, and I try as hard as I can to keep her relatively calm.

The CT Scan will be soon. I'll hopefully have some good news later today. They said the first 48-72 hours are the most crucial for the brain. We aren't even at 24 yet. This is going to be a long week.

[osupride97]

Prayers sent

[BackHomePoke]

prayers sent

[SeaOfOrange]

Prayers sent brother.

[osutuba]

The CT Scan was moved back to 4PM local time. Right now, they are hooking Aidan up to an EEG and the Pediatric Neurologist is in the room.

I appreciate all of the prayers being sent up. Every time I hear or read that someone is continuing to pray for him, I have to hold back tears.

[OU/OSUDividedFan]

OSU Tuba. I just wanted to weigh in and offer my prayers as well. I read your post and just cried through it and all the responses. I am so sorry you are going through this right now. I can only imagine how you both must feel. I hope and pray that everything turns out just fine and that your little guy makes a full recovery.

From what I've heard about the Jeff Gordon hospital, it is amazing. I think your son is in great hands.

Good luck man and keep thinking positive and keep your faith strong. Things will work out.

Shari

[osutuba]

From what I've heard about the Jeff Gordon hospital, it is amazing. I think your son is in great hands.
That is also what I have heard. I will say this much ... they are living up to their reputation. The paramedics and first responders were also phenomenal in what they did in working to bring Aidan back.

Also, I am constantly hugging my mother-in-law now, as she started CPR after we got him out of the water while I called 911.

[panhandler62]

You've our prayers and thoughts Russel .. I'm PMing you all of our numbers in case you need to talk.

[GoPokes82sMom]

My daughter called me with all this while Keith and I were at the store. Russell, you should have called me last night, and we could have prayed together. You know how excited I was when you guys found out Erin was having a baby. I adopted him as my own grandson, and my heart is hurting and full of prayers for him and the rest of you right now. Thank you for PMing Shari your cell phone number. I will call you in a few minutes. Stay strong and give Aidan hugs and kisses and lots of love from me. I love you all. Be sure to give your mother-in-law an enormous hug and thanks from me too.

[osutuba]

We just finished speaking with the neurologist. They did an EEG to test Aidan's brain function. It is looking good. There is activity and it looks hopeful. Since this morning around 1am he's been having seizures due to brain swelling.

The next 2 days are going to be the most critical with brain swelling. They are taking him for a CAT scan this afternoon and will do an MRI tomorrow as well as more EEGs to continue to check for further brain activity.

All of the doctors have told us is that it's a good thing that the water was so cold (about 40 degrees) and his body was so cold. In children the response to hypothermia is much quicker and can work to his benefit.

This is definitely trying on our faith and we are trying hard to stay strong for Aidan and our 7 month old as well, but it is hard. We am asking for any and all prayers that our little boy comes back to us.

We appreciate all of the thoughts and prayers thus far, and they've been working, just keep them coming. Aidan can use all the angels he can get right now.

[GoPokes82sMom]

I just talked to Russell, and he said the EEG is showing cortex activity. That is great news. I will help Russell keep everyone posted on updates. He did say that he appreciates all the prayers he is reading on this thread.

[AnniePokely]

Good deal. You keeping everyone updated will allow him to be with his family.


Lots of prayers headed that way.

[arfer0384]

I'll keep you guys in my prayers, Russell; I hope everything turns out well.

[osujane]

Still praying. Sending many hugs. :)

[Verb]

Continuing to pray here as well.

[PokesFanatic]

More prayers here for sure. Lord bless.

[GoPokes82sMom]

News is looking good. Russell will get me all the details when he gets back to the hospital and talks with the doctors. As soon as he sends me the word, I will get it on the board. Again, the prayers are working. Let's keep them going because Aidan is not out of the woods yet. The next 72 hours will be cruicial.

[GoPokes82sMom]

Here's the latest:

We got the results from the CAT Scan and everything is normal according to the neurologist. Also, he ran a test where he put ice water in Aidan's ears. What should happen is his eyes should dart to that ear. He successfully looked to the right, but did not really respond to the left. The neurologist thought this could be due to not putting enough water in his left ear, or the fact that he is sedated more heavily.

As for the seizures, they are still happening, but not as frequently or as heavily. This could be due to the increased anti-convulsive medications, the deeper state of sedation, or both. They also asked for an accurate temperature reading of the pond water. This will help establish how much help the cold may serve towards his recovery.

There will be another EEG tomorrow as well as an MRI. Again, the next 48-72 hours will be crucial to his recovery.

Russell and Erin

[barryrules]

Lots of continued prayers on the way!

[Chief-Poke]

Wow, just got on the board, prayers sent.

[osutuba]

A couple of things I just found out after talking to the nurse:

- The sedation is deep so there will be minimal stress on the brain and it can heal. Their philosophy is "the less stimulation, the better"
- While I was in the room with him a moment ago, they checked his pupils for a response and there was a response. This is good, as there wasn't one earlier today.

Guys, he is healing! He is doing better and better hour by hour. Again, THANK YOU!!!!!

If you want to place a face to the name of the boy you are praying for, go to http://aidanwilliam.aboutmybaby.com

[AlwaysOrange]

Just logged on and saw this. Prayers being sent. As many on this board can attest to....prayers work and God is good and will take care of his own.

[GoPokes82sMom]

That sounds great, Russell. Get some rest and call me tomorrow.

[OSUSTORM]

Prayers sent. I just got on.

[osutuba]

Will do, Mom :).

Right now, I am waiting on Nana and Papaw to leave, then I'll go in with Erin to sit in with him for a while before we head for our room.

I have said before how impressed I am with this Children's Hospital? They have "sleeping rooms" available on the floor so you won't be far from your kiddo if they are in ICU. I am sure others have this feature, but it has impressed me greatly. Also, the Dr.s and nurses here have been absolutely phenomenal. You can tell they have a genuine interest and compassion. Just about every staff member has either prayed with us or stated that Aidan is in their prayers. Several of the nurses have also had personal experience with their kids suffering traumas and can truly empathize.

[AnniePokely]

Lots of prayers still coming for little Aidan

[allie]

i just logged on and my heart is still in the pit of my stomach. will send prayers and will be thinking of you and your family in the coming days.

[AnniePokely]

Yea, it's a really bad feeling to log on and read something like this. I can't imagine how you and the wife are feeling, Russell.

Bless your hearts.

[osutuba]

We are, for lack of a better term, coping ... or at least trying to do so. I keep the faith by thinking of him waking up and saying "Hey!" to me. It also helps in keeping me from seeing the image of my son in the water that is now permanently burned into my soul.

My mil's bf (the "step-father-in-law") checked the pond temp this evening before he came to the hospital and told us it was 47 degrees. He said he measured it at a pretty good depth (when he put up his hands, it looked like 18-24 inches). The detective who took our statements about what happened (standard procedure when a child is involved in an accident) said he would check with his supervisor to see if he took a temp, as his supervisor was taking photos of the scene after Aidan was cleared out of there. The doctors said that anything under 50 is a good thing ... the lower the better.

[AnniePokely]

It also helps in keeping me from seeing the image of my son in the water that is now permanently burned into my soul.



I can't even imagine how that would feel.

[cactusjack]

Dear Jesus......


I just got on, for the first time in days. We will be praying for healing!!!!

[osutuba]

I can't even imagine how that would feel.Believe me, Michelle ... I wouldn't wish the feeling on anyone. I'll definitely be seeking counseling once this is all over.

[Erick]

I'll be getting him on our prayer chain at church as well as at our friend's. I can not imagine how difficult this must be. I am so glad to hear that things are getting better for your beautiful little man. God bless you.

[osujane]

God bless you, Tuba, and your entire family, especially your sweet boy.

Continuing prayers and positive thoughts - so happy he is getting phenomenal care. :)

[Uberpoke]

Just got on and saw this. Our oldest (5) fell into my in-law's pool twice now. Thankfully, he was around people both times, and he was rescued quickly both times. My wife and I thought THAT was traumatic...I can't possibly fathom what you're going through, Tuba.

Prayers sent and will continue to be sent your family's way. Our other son just turned 2 yesterday, and if memory serves--I remember seeing pictures of your Aiden soon after he was born on one of the other sites (Ryno's?) and thinking, "hey, here's a possible friend for our Colin."

God be with you and yours during this trying time.

[osutuba]

Yeah, I was on Ryno's site when Aidan was born.

Sorry to hear what you went through, Uberpoke. Yes, consider yourself fortunate that someone was there the moment he fell in the water.

[osutuba]

I want to thank all of you for your prayers thus far. It is said where two or more are gathered, there He will be also. Considering all of you, my family, Erin's family, MySpace, CakeCentral (board where Erin belongs), my Yahoo! Groups, former co-workers in Tulsa, and all the churches associated therein, God is hearing a lot of prayers for Aidan. That much prayer CANNOT be ignored by Him.

I'm turning in after Erin gets back, but please keep up the vigil. Tomorrow is a crucial day with the MRI and one-hour EEG. I believe those will give the best indication of where we stand in terms of Aidan's recovery.

[PokePorsche]

I'm not a super religous person...but will pray to God, Allah, Buddha, Krishna...whoever...to help your little one come out ok. Best wishes and mucho prayers from India....

[gopokes82]

Russell, I'm so sad to hear that this has happened. I can't even imagine what you are going through but do know that God has a plan and a purpose for our lives. My family's prayer will be with you and your family. We'll also provide our church with some information to continue praying for you as well.

God bless.

[orangeblood]

You have my prayers!!!!!!!!!!!! And I am posting his picture here at the station!!!!!!

[GoPokes82sMom]

I hope you and Erin slept as well as possible last night, Russell. That is so awesome about the sleep rooms there. I am awake now, I think, so call if needed. Hugs, love, and prayers still going your way.

edit: We need to go get roof shingles and stuff, so call me when you hear anything, Russell.

[GoPokes82sMom]

Here is the website for the hospital:

http://www.jeffgordonchildrenshospital.org/Chospital.html

You can send Aidan Wright an e-card from this sight.

[AnniePokely]

I can't get the ecard site to work.

[GoPokes82sMom]

I can't get the ecard site to work.

It did the same thing to me the first time, but I went back to the home page and clicked on e-card again and it worked. You might want to try again.

[GoPokes82sMom]

If you are having trouble getting into the e-card from the top of the page, click on Fun Stuff from the left side and it will take you straight there.

[AnniePokely]

Got it to work from the fun stuff link. Thanks.

[osupsycho]

Wow I was offline for a few days and just now seeing this. I will pray for the whole Tuba family and especially for Aidan.

[osutuba]

You have my prayers!!!!!!!!!!!! And I am posting his picture here at the station!!!!!!
Which station would that be?

[osutuba]

Here is the website for the hospital:

http://www.jeffgordonchildrenshospital.org/Chospital.html

You can send Aidan Wright an e-card from this sight.
You will need his middle initial, which is W.

Thanks for bringing that to my attention. I didn't even know you could do that!

[AnniePokely]

I didn't have his middle initial and mine went through ok. Says it takes one business day.

[osutuba]

For those of you with MySpace or some other blogging site, please post the ecard link as a bulletin and/or blog for me. It would be great to see all those cards for him as further encouragement.

[OSUSTORM]

Which station would that be?


That would be the fire stations that Greg works at.

[bumpas34]

Wow........man just logged on and seen this. I thought my life was hard right now. Never give up faith and always believe God can and will perform miracles. I'll definately be praying for your whole family.

[GoPokes82sMom]

Sorry for the delay in posting this for Russell, but we were out getting the stuff paid for and delivery set up for our new roof.

Update 02/18/2008 11:30AM Eastern:

Talked with the nurse just a moment ago. The EEG was performed this morning and we are awaiting the results. The MRI is on hold since he is still hooked up to a lot of machines that could potentially have problems due to the magnetic fields. There is another CT Scan scheduled for this evening (approx 6PM eastern).

Now for the positives that are occurring: They have just run a line to his intestine and will start feeding him from it once the X-Ray comes back and verifies it is where it needs to be. They have already started feeding him via his central line. Also, his seizures appear to have decreased significantly in intensity and frequency. The now look more like infrequent twitches. His color is also much better. They have started weening him off Dopamine, which was being used to regulate his BP. They dropped it by 2 micrograms (mics) and he seems to be responding well to that. The goal is to get him down to 8 mics and he is now at 18 mics.

This is going to be a long, slow, drawn-out process. I ask for constant and fervent prayer, but especially ask for it during his test times. I will do the best I can to get that information before the tests occur so you can pass it along to the people in your prayer chains.

Russell

[MASONOKIE]

Tuba. Thinking about you!!!

[Drummond12]

More prayers being sent...

[OU/OSUDividedFan]

Tuba, still thinking about yall and praying for yall. I continue to hope things go well. It sounds like he is improving a little each time news is posted. That is a great sign. Keep your head up.

Shari

[osutuba]

I am at the house right now getting some things together. We have an old laptop I am going to take to the hospital and see if we can connect with that. It will help free up at least one computer in the waiting room.

[GoPokes82sMom]

You know prayers are still coming from our home to yours. Give Aidan a hug from his Grandma Dortha. Love to all.

[GoPokes82sMom]

This is from Russell:

Here is the latest on Aidan:

1. Seizures: They have him on a very high dosage of Versed (sedative) and an anti-seizure med (can't remember the name). As a result, any seizures that were noticable before have "subsided". We'll know more about those once CT results are in. That brings us to ....

2. Tests: The hour-long EEG they ran on him this morning came back with brain activity and "looked good". There is a CT Scan with Contrast scheduled for 6PM Eastern Time. Results will be known later this evening. An MRI is scheduled tentatively for tomorrow depending on how he reacts to his drugs (more on that in a moment). That will show more about the deeper funtions of the brain. MRI Results will show if there is any damage to his brain stem, which controls the communication between the main part of the brain and the rest of the body (breathing, heart rate, etc.). Think of it this way: the main part of your brain is like an electrical power plant. Your body from the neck down is your house. The brain stem is the electical lines running from the power plan to your house. If one of the lines is blocked, cut, etc., you have no power to your house.

3. Drugs: They are continuing to wean Aidan off his BP meds (Dopamine and Epinepherine). Dopamine is down to 11 and was being lowered as I left. They want it to 8 by tonight and 5 tomorrow. Epinepherine is down to 0.6. They want him off of that completely by tomorrow in order to do the MRI.

4. Other Body functions: All organs are functioning properly at this time. There is still some pneumonia, which is expected when somone is pretty much laying in the same position for a long period of time. The nurses have started repositioning him to help the situation.

5. Prognosis: If the MRI comes back with little to no abnormalities, they are planning to wean Aidan off the ventilator on his birthday (Thursday) or Friday. At that point, we'll have his birthday party back there for him, per Dr. Black (the Pediatric Intensivist -- he is essentially in control of Aidan's health) :) He also said that Aidan's age is a huge benefit to his complete recovery, as well as the water temperature (for those new to the updates, the water was in the mid to upper 40s at the time of the accident). Best case scenario: he walks out perfectly normal. Worst case scenario: he would have multiple developmental (speech, learning, coordination, etc.) delays that would require therapy.

More updates most likely to come this evening.


From me: I don't know about you guys, but this sounds more and more promising to me.

[AnniePokely]

It's sounding lots better to me!

[Verb]

I feel VERY hopeful for a full recovery for Aidan.

[jakeman]

Hang tough tuba.

Having some trouble concentrating on things today due to your boy. He is very much in the forefront of my thoughts and prayers.


God Bless.

[GoPokes82sMom]

Aidan should be finishing up with the 6 pm test, so as soon as I hear something, I'll post it. Of course, Russell may do it himself. I'm just glad I could help him in any way possible right now.

Keep the prayers coming because they are working.

[OU/OSUDividedFan]

Mom, yes it definitely does sound more and more promising with each update. By the way, thanks for keeping everyone updated. I know this is hard on you too.

Sounds like the prayers are working to pull Aidan through this.

Tuba, that little guy you have there sure is a trooper. I'm confident he is going to pull through with flying colors. Sending huggies(hugs) and kissies(kisses) from my little 2 year old girl to your little (almost)2 year old boy. And yes, Lily really sent those. She saw his pic and I told her he was sick, she said "aawww poo baby, huggie kissie". So evidently, she sends her love as well. LOL I'll have to have her make him a b-day card and see if my Mom has your address so Lily can send it to Aidan.

I hope things continue to improve with each passing hour and test. It would be great if they were able to get him off the vent on his birthday. What a present that would be!!!!! Good to hear that yall should get to have a party there. That sounds great!

Shari

[BourbonPoke]

Russell--

My sincere thoughts and prayers to you guys and little Aiden in this difficult time. I can't believe what I am reading here. Nobody should ever have to go through a situation like this... especially a child. God Bless you guys and here's to a speedy and full recovery for Aiden.

[barryrules]

Glad to hear such a good update on Aidan!

And just like jakeman, I found my thoughts drifting towards Aidan several times today, and everytime they did I'd say a little prayer.

[CowboyDrewssss]

Prayers sent..

[osujane]

Sounds very hopeful. Little Aidan is obviously a real fighter. :-)

Prayers continuing.....

[osutuba]

Sounds very hopeful. Little Aidan is obviously a real fighter. :-)

Prayers continuing.....
He is part Irish and part Scottish ... you do the math. ;)

[GoPokes82sMom]

Here's another update:

We met with Dr. Corbier (the pediatric neurologist) this evening. Let me start by saying of all the doctors whom I have ever had contact, this one is the most wonderful and most compassionate I have ever met. He is truly a gift from God.

Moving on with the info:

1. The CT Scan with contrast showed no difference in comparison with the CT scan performed previously. This means that there has been no more problems with the cortex portion of his brain. There was also no more swelling in the brain, hydrocephalas (water on the brain), etc.

2. The MRI is on hold until the medications are at the proper level. Optimally, they want Aidan off the Dopamine and Epinepherine (BP meds) before they perform the scan. There will be several different scans performed, all a part of the MRI. Sorry, but I cannot remember all of them right now.

3. Dr. Corbier performed some other tests to check his activity by putting light in his eyes, as well as moving his head back and forth to see if the eyes track in the opposite direction. Both of these tests yielded positive results, which means his brain stem is trying to fire.

We are far from being out of the woods; however, the Dr. is feeling optimistic about where things are headed. The MRI will tell us how well the brain stem is functioning, as well as any potential problems with the cortex that the CT Scan didn't reveal.

Erin also told me she spoke with the nurses a moment ago and the meds have been decreased to the appropriate levels. So, it looks like we will be on track for an MRI tomorrow.

[Verb]

This sounds very promising, Tuba. I'll keep up the praying.

[AnniePokely]

God is good people!


God is working for Aidan!

[GoPokes82sMom]

I read this in Russell's journal and cried. He said I could post this on the board if I wanted too. It is personal, but it says a lot about faith we need to have in God.

Date: 2008-02-18 15:00
Subject: I think God is trying to tell us something ...
Security: Public
Mood: hopeful
Music: "He's My Son" by Mark Schultz

I have always believed that God sends us messages when we need them the most. Even though we have tried to be strong, it has been very difficult at times for myself and Erin to maintain a positive outlook, especially with seeing Aidan the way he is in the PICU. Last night and today, though, I have been given a sense of hope.

Since the accident, I have been placing a lot more faith in God than I hadin the past. I will admit that, as a Christian, I am hardly the model example of what one should be. I decided to start listening to a local Christian station here in NC, New Life 91.9FM in Charlotte. Last night on my way back from the house, I heard a particular song. I turned down the radio, as I did not want to hear it. Erin took the car later and heard the same song. Then, today, I had to get new glasses (lost them when I dove in the water to save Aidan). On the way into the parking garage of the mall by the hospital, I heard it again. At that point, I realized what was going on. I sat in the car, listened to the entire song, cried, and thanked God for what he was trying to tell me.

Below are the lyrics for the song I heard. You tell me what God is trying to say:



I'm down on my knees again tonight
I'm hoping this prayer will turn out right
See there is a boy that needs Your help
I've done all that I can do myself
His mother is tired
I'm sure You can understand
Each night as he sleeps
She goes in to hold his hand
And she tries not to cry
As the tears fill her eyes

CHORUS:
Can You hear me?
Am I getting through tonight?
Can You see him?
Can You make him feel all right?
If You can hear me
Let me take his place somehow
See, he's not just anyone
He's my son

Sometimes late at night I watch him sleep
I dream of the boy he'd like to be
I try to be strong and see him through
But God who he needs right now is You
Let him grow old
Live life without this fear
What would I be
Living without him here
He's so tired and he's scared
Let him know that You're there

CHORUS

Can You hear me?
Can You see him?
Please don't leave him
He's my son

[GoPokes82sMom]

Russell said he would send me updates three to four times a day, and I will copy/paste them here for everyone.

[osujane]

Russell said he would send me updates three to four times a day, and I will copy/paste them here for everyone.

Thank you so much, "mom." Prayers for you too. :) Aidan is lucky to have you in his life.

Also, that song is truly amazing, in this context. Wow.

[AnniePokely]

http://a363.ac-images.myspacecdn.com/images01/31/l_1a77bb3afed93d55951a90da2636bbfa.jpg

[osutuba]

http://a363.ac-images.myspacecdn.com/images01/31/l_1a77bb3afed93d55951a90da2636bbfa.jpgGRRRRRRRRRR ... it's a MySpace image so I can't see it! Crap!

[AnniePokely]

40

There ya go Russell.

[GoPokes82sMom]

Russell wrote this sometime after midnight. My heart sank, and I realized just how much God watches over us.

Erin and I found out today just how bad Aidan had been on Saturday. He was in full cardiac arrest from the time my mother-in-law initiated CPR until the paramedics got him to the hospital. This was nearly 40 minutes after the 911 call was recieved. This means Aidan was clinically dead for approximately 45 minutes when you add in the time he was in the water. The doctors believe he was only in the water 4-7 minutes, though there is no way to really tell according to Dr. Black (the pediatric intensivist).

Dr. Black said that the worst case senario is that Aidan will have some damage to his brain stem and will have developmental/speech type of delays and will require lots of therapy. That's the worst senario. We can deal with that.

We do not know how to express to everyone just how much your prayers have helped. We truly believe in angels and miracles and Aidan has so many angels looking over him and the fact that he is here right now and that his condition is improving, although he is still critical, is in itself a miracle.

[osujane]

http://www.unclebill.us/bigs/angel.gif http://www.unclebill.us/bigs/angel.gif
http://www.unclebill.us/bigs/angel.gif

[barryrules]

Glad to see another positive update. Continued prayers on the way for that adorable little boy of yours Russell.

[GoPokes82sMom]

Here's this morning's update. Prayers needed harder today.

Dr. Black met with us again this morning. He told us he had good news and a setback:

Good News: Aidan is now off the Epinepherine and the Dopamine continues to be eased off (down to 6 from 20). They are also easing off the Versed (sedative -- now at 0.4 from 0.20). The MRI is scheduled for this afternoon so they can coordinate with the anesthesiologist (required since he is on a ventilator). Brain activity is still good (per previous posts, EEG from yesterday looked better from the previous one; no difference in the 2 CT Scans that have been run thus far).

Setback: His great job at breathing has been set back partially. They discovered there is some fluid outside of his lung on his right side, which is creating additional pressure and not allowing his lungs to function as well as before. Dr. Black has talked with the pediatric surgeon and is getting a chest tube put into his right side so the fluid can be drained off his lungs. They also got more information about the pneumonia. They got back the labs and discovered he has a strain of strep pneumonia as well as another bacteria. Aidan is now on two very aggressive antibiotics for those to go along with the inital broad-spectrum antibiotic. The one for strep pneumonia is designed to handle more drug-resistant strains. Dr. Black said that this is a precautionary measure; Aidan does not necessarily have that particular strain. Unfortunately, this setback has tenatively pushed back the day to take Aidan off the ventilator to this weekend.

Many Thanks! I wish to extend my heartfelt thanks to everyone who has sent Get Well Cards. I just had the link posted yesterday afternoon and there was a stack of 34 cards waiting for us in Aidan's room this morning. Again, thank you for your continued thoughts, prayers, and well wishes.

[osutuba]

Russell wrote this sometime after midnight. My heart sank, and I realized just how much God watches over us.
Actually, Erin wrote this on another board where she is a member. I asked her to send it to me so I could add it to the blog. Still, it was hard to hear that from the Dr. :(

[barryrules]

Tons of continued prayers for Aidan!!!

[OU/OSUDividedFan]

Continuing to pray for this little guy.

I know that song very well. It is one amazing song. Brings me to tears everytime that I hear it.

Shari

[panhandler62]

Hang in there my friends....

May the Lord be with you and uphold you and may his grace fall upon Aidan.

[Drummond12]

Continued prayers for Aidan. Hoping the anitibiotics kick in quickly on the pneumonia.

It sounds like he has a wonderful team of doctors and nurses (as well as parents! you guys are doing a great job and must be exhausted.) who are staying on top of everything....praying this setback is short-lived.

[Roman Craig]

I just read about this, my thoughts and prayers are with you.

[GoPokes82sMom]

Update:

Erin ran into Dr. Black while getting something from the nurses' station a little while ago. Dr. Black let her know that they did not have any compatible connectors (for the drugs, I guess), so the MRI has been moved back to tomorrow. They have decided to go ahead and wean Aidan completely off the dopamine.

[Ivan]

So sorry to hear this Rus, I'm thinking about ya bro. Jump on MSN tonight and we can talk.

[osujane]

Continued thoughts and prayers for precious little Aidan and your entire family.

[GoPokes82sMom]

New update:

Believe it or not, it has been a pretty quiet day. Here is what I can tell you:

Dopamine (BP Mediacation) is down to 2 micrograms
Versed (Sedative) is at .4 mg
Fentanyl (anti-convulsant) is also at 2 micrograms
He is on 3 antibiotics: Vancomycin, Ampicillin, and Gentamycin (via nebulizer)

Aidan was given a second unit of blood (first unit given yesterday) due to low hemoglobin levels. Also, the chest tube appears to be working well.

The goal is to get Aidan off the Dopamine before tomorrow morning so they can do the MRI at that time.

[AggieSpice]

New update:

Believe it or not, it has been a pretty quiet day. Here is what I can tell you:

Dopamine (BP Mediacation) is down to 2 micrograms
Versed (Sedative) is at .4 mg
Fentanyl (anti-convulsant) is also at 2 micrograms
He is on 3 antibiotics: Vancomycin, Ampicillin, and Gentamycin (via nebulizer)

Aidan was given a second unit of blood (first unit given yesterday) due to low hemoglobin levels. Also, the chest tube appears to be working well.

The goal is to get Aidan off the Dopamine before tomorrow morning so they can do the MRI at that time.

yuck! he is going to be pissed when he wakes up! which with all these prayers will no doubt happen SOON. another prayer sent!

[britteeg]

It is so nice to hear that Aidan is progressing. We'll continue to keep your family in our prayers.
~Brittney
(ER Care Partner)

[OrangeFan4Life]

So sorry to hear about your Son. I will be praying hard for him and the rest of your family. Just remember OUR GOD IS AN AWESOME God!!!

[GoPokes82sMom]

I am sure Aidan, Russell, and Erin, along with the rest of their family, are very grateful for all the prayers being said for them during this time.

I don't have any new updates at this time, but as soon as I do, I will post them unless Russell does them himself.

[PokesFanatic]

Continued prayers from my camp and myself...

[osu&cardsfan]

I just logged on and read this thread. Please know that prayers are being sent from our house. I have a 2 year old little boy and cannot even begin to imagine what you guys are going through.

[Jonno]

Prayers to you and yours Tuba.

[JonforOSU]

A prayer that the Lord may keep him safe and guide him to a full recovery have been sent. Good luck to little Aiden

[rodbakeriii]

Prayers from DFW. Wishing all the best...

[GoPokes82sMom]

I talked to Russell after midnight this morning, and he gave me an update on Aidan.

Here is the latest:

Aidan is completely off the Dopamine and his blood pressure is completely normal! This is huge because it will allow him to get the MRI tomorrow. They continue to wean the sedation and anti-seizure medications; he should be completely off the Versed by morning, but not sure on the Fentanyl.

When Erin was in the room earlier, she got to help the nurses in bathing him and changing the bed sheets. At one point in moving Aidan so the sheets could be changed, she saw him trying to cough while ventilated. This is a good thing, as it means he is responding to movement. Any sign of something like this is excellent.

[GoPokes82sMom]

Russell said that Aidan has received a ton of e-cards from everyone. They read each one to Aidan. I wanted to let you guys here know how much this means to Russell and Erin. They really appreciate the outflow of warmth, caring, and prayers. Like I told Russell, we are family here. Blood family and/or OSU family, it doesn't matter, we are family. Now I will have that song playing in my head all day. :D:eek:

[BleedingOrange]

Now I will have that song playing in my head all day. :D:eek:

We are family
I got all my sisters with me
We are family
Get up everybody and sing

We are family
I got all my sisters with me
We are family
Get up everybody and sing

Everyone can see we're together
As we walk on by
And we fly just like birds of a feather
I'm not telling no lie

All of the people around us to say
Can we be that close
Just let me state for the record
We're giving love in a family dose, yeah

CHORUS
We are family
I got all my sisters with me
We are family
Get up everybody and sing

We are family
I got all my sisters with me
We are family
Get up everybody and sing

Living life is fun and we've just begun
To get our share of the world's delights
High hopes we have for the future
And our goal's in sight
No we don't get depressed
Here's what we call our golden rule
Have faith in you and the things you do
You won't go wrong, oh no
This is our family Jewel, yeah

CHORUS
We are family
I got all my sisters with me
We are family
Get up everybody and sing

We are family
I got all my sisters with me
We are family
Get up everybody and sing

We are family
I got all my sisters with me
We are family
Get up everybody and sing

We are family
I got all my sisters with me
We are family
Get up everybody and sing

[GoPokes82sMom]

Thank you for those kind words. LOL I knew I could count on you as always.

[OU/OSUDividedFan]

That is awesome news on the update. Way to go Aidan. Keep up the good work little man.

Shari

[Erick]

Should be receiving word on the MRI soon. Still prayin!

[GoPokes82sMom]

Aidan is having the MRI done now. As soon as I hear anything, I will let you all know.

[Drummond12]

Continued prayers for good MRI results. We just sent him an e-card. :)

Carey

[GoPokes82sMom]

Here's the update on the MRI:

Just got back from seeing Aidan. I was told by one of the nurses that the last chest x-ray looked good, so they took the chest tube off of mechanical suction. Another chest x-ray will be done tomorrow, and the chest tube may be removed tomorrow if there is significan't enough improvement.

After spending some time with Aidan, I was walking out and saw Dr. Black at the Nurse's Station. He immediately apologized profusely for not getting with me and Erin then gave me the following information:

The MRI revealed some hypoxia left frontal lobe and both the left and right parietal and occipital lobes and another MRI may be performed to check this out further; however, the brain stem and mid-brain are perfectly normal!

Praise God!

This was the corner that we were waiting to turn to (IMO) ensure that Aidan was going to come out of this okay! Dr. Cormier still needs to meet with us about the MRS, but this is great news!

Now, it is a a matter of waiting for the meeting with Dr. Corbier. I'll post another update once that meeting is over.

[BigBadBen]

Great News man!!

God IS Good!

[barryrules]

The MRI revealed some hypoxia left frontal lobe and both the left and right parietal and occipital lobes and another MRI may be performed to check this out further; however, the brain stem and mid-brain are perfectly normal!
.

Great news about the brain stem!! But can anyone explain the other hypoxia stuff????

[osutuba]

Great news about the brain stem!! But can anyone explain the other hypoxia stuff????
http://en.wikipedia.org/wiki/Cerebral_hypoxia

[AnniePokely]

Hypoxia is a deprivation of oxygen

[AnniePokely]

Remember what i told you Russell? Better start planning that birthday party again!


God is Good.

[barryrules]

http://en.wikipedia.org/wiki/Cerebral_hypoxia

Thanks Russell!!

By they way, how are you and Erin holidng up?

[andyokstate]

That is fantastic news! It sounds like he is fighting hard. Thanks for keeping us updated with his progress.

[GoPokes82sMom]

Another one:

Other reports of obvious improvement of Aidan's condition:

- Attempting to open his eyes (increased the Versed as a result)
- Raising his arms occassionally when moved
- Coughing
- Hiccups (real ones ... the previous ones were actually seizures)

[osupsycho]

Glad to hear the good news. Will continue with the prayers.

[osutuba]

Thanks Russell!!

By they way, how are you and Erin holidng up?
It's a mixed bag, really. I'm encouraged by the news, but Erin just wants it to all be over. I comfort her as best I can, but it helps that her family is there a lot. I wish my mom was here with me, but at least I can talk to her on the phone. I think she is talking about coming to NC after Aidan gets moved from ICU, which would be great.

[osujane]

The news sounds very positive - I'm so happy.

Will continue to pray. :)

[JCS4OSTATE]

Russell, I have been watching this thread closely, and wanted you to know the big sigh of relief I felt when I read it tonight. I know it has been very tramatic for you and Erin, and I was so excited to hear the good news from today. It is so wonderfull to have not only personal family, but the OSU family is just amazing, sometimes I feel so lucky to be a part of it, as I know you do. I hope that tomorrow brings continued good news.
Continued Prayers brother
Chad

[GoPokes82sMom]

This is Erin. I just want to thank everyone for their prayers, love and support. I don't think I'll ever be able to express to anyone just how much it means to me.

With that said, I wanted to provide an update since we got to speak with the neurologist this evening. He told us what we already knew from Dr. Black about Aidan's brain stem and mid-brain being normal. He also explained the areas that showed hypoxia and said that they did not look severe, and are reversible. He also said that his initial response to the MRI was that Aidan WAS NOT in the water as long as we thought. This is all wonderful news as I'm sure you all know.

While Dr. Corbier was in here with us, I was holding Aidan's hand and he started trying to cough. He began raising his hand/arm, moved his head some and started blinking and trying to open his eyes. It was amazing to see and made me break down. This whole time I have been praying for my baby to come back to me, but I'm still scared that he will be different.

Aidan is a strong little boy and he proved that to me today. He is a trooper and I can not wait until he can drive me nuts again. I miss his hugs and his kisses and all of the little things he does. I wish that you all could know just how wonderful he is. You would all be wrapped around his finger.

Tomorrow is Aidan's 2nd birthday. When he gets out of this place and is able to come home we are going to have a belated birthday/welcome home party for him.

Thank you again, for all of the prayers. I've never been a really religious person, but this has definitely renewed my faith in God and the good in people in general. All I can say is thank you, thank you, thank you.

[OrangeFan4Life]

PRAISE THE LORD!! It is sounding more and more like Aidan will make a full recovery. Still praying and God is still answering.

[Verb]

It's so powerful and moving to witness this miracle that Aidan is living before our very eyes. The message here is NEVER lose hope, NEVER lose faith. Expect miracles and trust God!

[osujane]

What Verb said. :-)

Wonderful news! Bless your whole family, Erin. Thanks for updating us.

[MajorMike]

I just want to say that I don't normally post on these threads, I just normally read and send my thoughts by myself. I have been following your progress with much anticipation of each update. As a daddy of 3 little ones, I know how much my world completely revolves around them. I am so happy for your successes to this point. Just think, he gets to relearn how much he loves both of you.

[OrangeFan4Life]

HAPPY BIRTHDAY AIDAN!!! & MANY MORE!!!

[barryrules]

Happy Birthday Dear Aidan, Happy Birthday to you!!!!

Glad to hear he is making such good improvements every day!

[osutuba]

It's so powerful and moving to witness this miracle that Aidan is living before our very eyes. The message here is NEVER lose hope, NEVER lose faith. Expect miracles and trust God!Ever since we heard that they were able to bring Aidan back from death, faith and hope have been two things running in high supply around my family.

I will echo Erin's sentiments: THANK YOU SO MUCH for all the prayers and support!

[AnniePokely]

Happy Birthday Aidan!!!!

[osupride97]

Happy Happy Birthday Aidan

God bless you all

[britteeg]

Happy Birthday Aidan! May God be with you now and always!

[GoPokes82sMom]

I sent Aidan an e-card yesterday for delivery on his birthday today. Happy birthday, Trooper.

[PokesFanatic]

What wonderful news. God is definitely good!!! Happy Birthday Aidan, Lord Bless the entire Wright family.

[CowboyJD]

I just want to say that I don't normally post on these threads, I just normally read and send my thoughts by myself. I have been following your progress with much anticipation of each update. As a daddy of 3 little ones, I know how much my world completely revolves around them. I am so happy for your successes to this point. Just think, he gets to relearn how much he loves both of you.

I feel the exact same way as the Capt.

[GoPokes82sMom]

I wanted to let you guys know that I am not slipping in my commitment in updating this thread. I am hoping no news is good news.

[BourbonPoke]

Happy Birthday little man!! Keep fighting Aiden!

[osujane]

http://i48.photobucket.com/albums/f248/JaneAnn55/thhappy.gif

to dear Aidan!!

[jakeman]

Has anyone talked to tuba, or his family?

[GoPokes82sMom]

Has anyone talked to tuba, or his family?

I tried calling earlier and didn't get an answer. I am still hoping that no news is good news, but I am starting to get worried.

[osutuba]

I tried calling earlier and didn't get an answer. I am still hoping that no news is good news, but I am starting to get worried.
I didn't know you had tried to call. I had the phone on silent earlier due to a meeting I was in regarding a possible job opportunity. Did you call the cell?

[GoPokes82sMom]

As of right now, Aidan is still on a ventilator. They are weaning him off of the sedatives so that they can remove the breathing tube, hopefully Saturday. He still isn't awake. He makes movements when the nurses move him or try to take his temp. He makes movements when we are in the room with him. This evening he was really moving his arms and when he does so his heartrate and blood pressure rise. I made the mistake of trying to read to him. I thought that hearing my voice would help settle him, but it only made it worse. The nurse told me that we needed to limit his stimuli right now since they are trying to keep him as calm as possible while they get him off the sedatives so we can get him off the vent.

His chest x-ray looked good this afternoon. Everything that we are hearing is good. It's just baby steps. He did have a seizure last night but they got it under control in less than 3 minutes. He hasn't had another one today. We were told this morning that he would most likely be on anti-convulsives for about 6 months or so, and he will have to have some kind of rehab (just not sure yet, until he's awake and we know what we're dealing with for sure).

I did meet the mother of a little boy who had a similar accident 5 years ago. At the time the little boy was 2 and he fell into the family's swimming pool. This little boy was in ICU for 15 days and when he went home he was blind in his left eye and he had to go through rehab to teach him how to walk and talk again. The mother picked the little boy up at school today and told him that they were going to visit someone and he said to her, "we're going to see that little boy who fell in the pond, aren't we?" She hadn't even said anything to him about it before then. The boy brought Aidan a little stuffed dog and a balloon. It was so encouraging to see him now at 7 as a healthy little boy with no signs of having such a terrible accident.

Today was Aidan's birthday and I could think of a million other things I'd rather be doing for my baby's birthday than sitting here in the hospital. This evening hasn't been the greatest for me. I can't help but feel useless just sitting here. I can't help but blame myself for not keeping Aidan safe. It's my job. I don't like anyone to take care of my kids, because it's my job. They're my kids and my responsibility. I could have done so many things different to keep him out of that water.

Logically, I know that I can't go back and change the past, and I know it's no one's fault, but, my heart feels guilty. Aidan is such a strong little boy and we're going to get through this. Russell is going to get a job soon and we're going to go on with our lives and be a family. Well, enough of my little pity party.

I do appreciate all of your prayers and the wonderful cards that are being sent. We read them to Aidan every morning. We'll update again tomorrow.

-Erin

[GoPokes82sMom]

I have been able to get info for an account to setup to help curb some of the costs for the expenses and medical treatment for Aidan. I will start a new thread for this so it won't get lost in this thread.

[osutuba]

Erin forgot to mention, but they removed the chest drainage tube this morning.

[GoPokes82sMom]

That sounds great, Russell.

[topdaug]

How did I manage to miss this until now? Wow...I can't begin to fathom what you're going through Tuba...know that my thoughts are with you and your family....

[osutuba]

How did I manage to miss this until now? Wow...I can't begin to fathom what you're going through Tuba...know that my thoughts are with you and your family....Thanks daug. I appreciate it.

[GoPokes82sMom]

Not much to report today. Aidan is off the Versed and Fentanyl and has been moved to an anestethic. This is a much faster-acting anesthetic with a very short half-life. This means he gets knocked out quickly and once he builds a tolerance or the dosage wears off he starts to come around within 30 minutes. Aidan is still on the ventilator, but they hope to take him off of it tomorrow. They are still clearing stuff out of his lungs, but it is not mucous like before. They said it is more "frothy". He also has started showing a lot more movement, which is important. he also reacts a much more when stimulated.

The cards keep coming in for Aidan, which is awesome. We have received several cards in the mail, as well as numerous e-Cards from the website. These are greatly appreciated. I cannot begin to adequately thank everyone for the support and prayers we have received from across the country and even around the world thus far.

-- Russell

[osutuba]

One other big thing going on is that he is actually breathing over the respirator. The is important in that it helps asses the likelihood of pulling the tube.

[OU/OSUDividedFan]

Russell and Erin,

I have posted your story on my Preemie Toddler Board. It is a private board that can't be accessed by others, but I wanted even more people praying for little Aidan. The group of women are all great and we have all had preemies. A lot of them, know what you are going through to some degree with your baby being in an ICU and send their love and support. They are all saying many prayers each day for Aidan and your entire family. They may not be OSU family or your actual family, but they are a part of a family that is called parents. As parents, we all come together when a little one is in distress or needs prayers. Believe me, they send their love and support. Much love Russell and Erin from all of us on the Preemie Toddler Board.

Shari

[osutuba]

Thanks Shari!

[Ivan]

Happy birthday little man~!

[osutuba]

A little late (was yesterday), but still greatly appreciated.

[osujane]

I check this thread at least 3or 4 times a day and thrilled to see good news.

Still praying, so happy things are going well.

[GoPokes82sMom]

Me thinks Russell has had too much Irish coffee this morning!!! ;) D)

Good Morning! This morning's update is brought to you by BoJangles ... GottaWantaNeedaGettaHavea BoJangles!

Aidan's scheduled for a follow-up MRI sometime today. Once again, they have to coordinate with the anasthesiologists. The results will determine whether or not they can remove the breathing tube today. They let us know that there is the likelihood that the tube will be put back in after it is taken out ... it all depends on how he does once the tube is removed.

No e-cards today, as they only print them Monday-Friday.

Approximately 3:30PM will be exactly one week since Aidan drowned. Would love to have him extibated around that time and be breathing completely on his own. IMO, it would be sweet justice over the grave if that were to happen!

[osutuba]

Me thinks Russell has had too much Irish coffee this morning!!! ;)Nah ... just feeling very optimistic today :)

[GoPokes82sMom]

Just Checking, Russell. Glad to see your sense of humor is coming around. Haven't seen it or heard it in a while. My love to all of you. Hugs and kisses all around.

[barryrules]

Great news Russell, and a sense of humor always helps things!

Continued prayers being sent.

[SeaOfOrange]

Great news so far. Continued prayers for you, brother. Hang in there.

[osutuba]

Great news so far. Continued prayers for you, brother. Hang in there.
Thanks, Sea. The not knowing is the worst part of this whole thing

[GoPokes82sMom]

Late update, sorry. I think Aidan may be out of the MRI now.

Aidan is currently going in for his follow-up MRI, and will be down there for about an hour and a half. Pray for a 100% clean scan.

Also, Erin talked to Dr. Black and he said we should expect Aidan to be in an in-patient rehab facility for 6-8 weeks. Needless to say, that upset Erin quite a bit. We definitely need prayers for me to find a job ... and SOON!

[osutuba]

Yes, he is out of MRI. I hope to have another update in a little while (hopefully before the OSU-KU game)

[GoPokes82sMom]

This does not sound good, but I may be misunderstanding what is being said. Prayers being sent at record breaking speed.

And two GIANT steps back! AUGH!

The MRI came back and apparently it looked good enough to justify extebating Aidan. They did that at 3:15 PM Eastern.

About 30 minutes later, Erin and I go back to see Aidan. His breathing was "rattled" (i.e., lots of noise from secretions) and his vitals were sky-high. We tried to comfort him, but it didn't work. The nurses also gave him Ropinol to help dry up those secretions. Even after several coughs, he was still bad. Dr. Black assessed him and determined it was best to re-intebate him. This was after 2 hours.

Fast forward 30 minutes again. My brother-in-law and I went back to see Aidan and he was no better: vitals still sky-high and respiration still high. Matt (the brother-in-law) left immediately. I stuck around and watched him as he continued to struggle. The nurse came in and informed me that a baby a couple of rooms down ws going south, so they were working on him at that moment. I stuck around a little longer then came back to the room. Erin then proceeded to tell me that she was taking Evan to urgent care. Throw in that she also isn't feeling well, and suddenly a potentially great weekend has turned to excrement coming from the sphincter of a male bovine.

Frankly, i am upset and stressed. I'm not sure, and I may be on the verge of my own major meltdown. It seems like all the effort and progress that we just experienced has fallen to the wayside.

I have decided that after this post, I'm taking a break. Aidan is still on the ventilator and no tests are currently scheduled for the weekend. I will not be responding to any emails, nor will I read or make any posts on message boards. If you call me, I will most likely not answer unless you are immediate family. Even then, you'll have to catch me in the right mood. Come Monday or Tuesday, I will post again. I at least owe you an update when something happens out here.

[Verb]

I don't think this sounds too bad. I believe Russell said yesterday that they were told that the tube would possibly have to go back in.

I think it's all catching up with Russell, and I'm glad he's taking a break for a couple of days. But I still feel as hopeful as ever for Aidan.

[OU/OSUDividedFan]

Russell did say that the potential for the vent having to be hooked back up was there. I also believe that this is normal in a lot of circumstances. I've heard of babies who seemed to be doing ok, but then just couldn't handle it yet and had to be reintubated. I've heard about it a LOT.

Let's just keep sending the prayers as we have been. The fact that the MRI looked well enough to pull the vent means a lot and is huge in and of itself. Aidan is making progress. He is doing well all things considered.

Russell, I think it is a good, no great, idea for you and Erin to take a break for a bit. As a parent of a NICU loss and now a NICU survivor, I can tell you that it is full of ups and downs. One step forward then two steps back. Soon it will become two steps forward then one step back. And then it is a triumph. It truly is a roller coaster ride. I know Aidan isn't in a NICU, but he is in essentially the same place, just for older kids. Keep your heads up. Things will come around and I'm sure they will work out for the best. Aidan has already proven that he is a fighter, big time!!!! Keep the prayers going, as I'm sure all of us here will. God listens, God understands, God answers, and God prevails. Just remember, it is never in OUR timing, but HIS timing. I will continue to pray for Aidan. He is in great hands, God's hands.

Sending much love, prayers, and support to the Wright family.

Shari

[GoPokes82sMom]

I just talked to Russell. He sounds pretty beaten down. I told him that it is a good idea to take a couple of days break from everything and everyone except Erin, Aidan, Evan, and himself. They need recouping time. I will update as I talk with Russell. Erin took Evan to the Urgent Care place, and he has the flu and a pink eye.

Extra prayers going out to all four of them.

[GoPokes82sMom]

Russsell sent this after midnight.

I know I said that I wasn't posting anything else this weekend, but I also said I would post an update if something significant happens. Fortunately, something significant has happened!

Aidan has been put back on the Fentanyl (the anti-seizure medicine) as well as another medication (can't remember the name). This has got Aidan's vitals back to normal and he is resting comfortably. He also had a fever of 104, but they were able to get that controlled. They also have taken various cultures from his bodily fluids to see if anything in those caused that to happen.

[osujane]

Thanks to mom and tuba for the update. Hope Aidan and the tuba family are feeling better today. Still saying prayers.

[GoPokes82sMom]

Today was a horrible day and really wasn't what we were expecting. I think, well, I KNOW, that I had an unrealistic image of what was going to happen and today those ideas got knocked down a rung or 10.

I want Aidan to be better NOW, even though I know it is going to take baby steps. Seeing him like he was today, struggling and agitated, just took a toll on all of us.

What I know is this- Aidan is a very strong(physically), very determined, strong-willed, little boy. He's hard headed and adorable all at the same time. He has the best and the worst of both Russell and I. He's fighting this right now, and he just needs more time.

Tomorrow is another day, and we'll see how it goes. The doctor told me we're looking at about another week in the hospital. That was before all the drama unfolded. So, we're probably looking at a little longer unless he starts responding better. Also, when he is released from the hospital, he won't be coming home right away. He will most likely go to a rehab facility for 6 weeks to 2 months (this was the Dr.'s initial though-not written in stone).

This is what I meant by my visions of what was going to happen got knocked down several rungs on the ladder to recovery. I knew that Aidan would need rehab when he came out of the hospital, I guess I just assumed that we'd be bringing him home and I'd be taking him every day to rehab. I know it's for the best, but I'm the control freak and it breaks my heart to be away from him.

I have cried about this almost all evening, I've worried about it, and I've prayed about it. I'm going to just trust that GOD is going to take care of Aidan and that he's going to come home to us. As my friend's little girl said, she had a dream about Aidan and Jesus told her that Aidan was going to be okay. That's the wisdom of a 3 year old.

I don't know why this had to happen to our little boy. I don't know why anyone has to endure this kind of tragedy. If anyone can be made more aware of how to keep their children safe around water then something good can come of our pain.

Russell and I both greatly appreciate all of the prayers and cards that have been sent. I know that I say this every time I write something but I'll never be able to thank you all enough. They bring me hope and help to renew my failing faith when things look bleak. Thank you all!

[barryrules]

I sure wish I lived close enough to give Erin a big hug! I just can't imagine the emotions she is going through right now. Will continue to keep them all in my prayers.

[GoPokes82sMom]

I know that Russell said he was going to take a break from posting for a few days, so I thought I'd just give you all a little update. There isn't much to tell, though. Since last night, Aidan has been sedated and his vitals look good. He's calm and resting. I was at home most of the day with Evan as he is sick with the flu, pink eye and an ear infection, so I wasn't able to talk to the doctors today. Russell did speak with the neurologist and from what he told me, they are planning to run another MRI in 4-5 days and they are going to do another EEG tomorrow.

I'm praying that everything looks okay tomorrow and that there are no further signs of seizures of damage. I'm worried about the toll of the stress from yesterday on his body, especially his heart and brain. I realize that we had to try to take him off the ventilator to see how he would react to it. I'm just hoping that giving him some more time to heal will allow him to stay off it for good next time without all of the stress on his body.

Other than that, it was a quiet day. He's resting and for now that is okay. Thank you for all the prayers!

Erin

[OSUFan]

I was hoping to open this and find better news. You all are still in my prayers.

[GoPokes82sMom]

The latest update:

Dr. Black met with me and then Erin this morning. He pretty much said the same thing to both of us:

Another EEG is scheduled for today. Hopefully there will be some improvement from the previous one. Another MRI will happen later this week. Pneumonia is pretty much gone according to the chest x-rays, though they keep getting cultures from his lungs just in case. He will be on antibiotics for another few days (10 days total, so most likely this Wednesday), then taken off. They also removed his Foley catheter and the arterial line they were using primarily for BP checks. The central line will be removed in the near future. Leaving these lines in result in infection.

They are looking to extebate again later this week or maybe even wait until next Monday. If all goes well, great. If not, Aidan will end up getting a tracheostomy as well as a gastric tube, which means two simultaneous surgeries. If that were to happen, he would have those for several months.

Rehab is looking at 8-12 weeks now. He has recommended we look for in-patient pediatric rehab centers that specialize in children with head/brain trauma. Cities he gave: Atlanta, Baltimore, Cincy, or Denver. This means moving the family to that area, staying most likely at a Ronald McDonald house, and me finding a job in the city we choose to move to. Does this mean a permanent move to that city? I have no idea. We also have no idea how we will be able to pay for it. Someone suggested we check with March of Dimes or some of the other charities that specialize in helping families with children. So now, my Internet searches will consist of finding jobs in those areas, as well as finding out about the various rehab centers.

Drs. Casseras (intensivist) and Farerras (neurologist) are taking over starting tomorrow. We'll see where things go from here with them in charge.

[AustinPokeFan]

Russell,

Have you checked with St. Judes in Memphis? It's (Memphis) a pretty tolerable place to live if you need to. Also, the folks at Ronald McDonald house are great, as we did a lot of make ready work for them here at there new place in Austin. The rooms are pretty much like small hotel suites, and there is a central kitchen area. They have fulltime wireless, cable TV, and a gaming room with several consoles. It depends on the individual house, but I was just going by the new one here. There is a brand new Dell Children's Medical Center here that is state of the art, FYI: http://www.seton.net/locations/dell_childrens/

I'm glad things continue to look up for Aidan.

[osutuba]

Russell,

Have you checked with St. Judes in Memphis? It's (Memphis) a pretty tolerable place to live if you need to. Also, the folks at Ronald McDonald house are great, as we did a lot of make ready work for them here at there new place in Austin. The rooms are pretty much like small hotel suites, and there is a central kitchen area. They have fulltime wireless, cable TV, and a gaming room with several consoles. It depends on the individual house, but I was just going by the new one here. There is a brand new Dell Children's Medical Center here that is state of the art, FYI: http://www.seton.net/locations/dell_childrens/

I'm glad things continue to look up for Aidan.
I though St. Jude's was for burn and cancer patients. I'll look into it, though.

[MemphisPoke]

Russell:

Check with Dortha. I sent her some information to pass on to you.

And yes, St. Jude is mostly for Cancer and other diseases which can affect children. Not really for burns. Those would go to the Shriners Hospital if severe.

[GoPokes82sMom]

Thanks, Al. I passed the info on to Russell.

[gopokes82]

Russell, you may like to know that Oklahoma City has a rehab center. The Children's Center, http://www.tccokc.org, specializes in this type of stuff. They may be cheaper for you since it is in a lower income state.

Just thought I'd pass that info along.

[osutuba]

Russell, you may like to know that Oklahoma City has a rehab center. The Children's Center, http://www.tccokc.org, specializes in this type of stuff. They may be cheaper for you since it is in a lower income state.

Just thought I'd pass that info along.
I think we are looking to stay out this way because it is highly probable that I will end up with a job here in NC and would have to visit the area on the weekends. Also, we want to make sure we go to the best possible rehab center out there.

[bleedorange]

I think we are looking to stay out this way because it is highly probable that I will end up with a job here in NC and would have to visit the area on the weekends. Also, we want to make sure we go to the best possible rehab center out there.

Your location preference is understandable, but The Children's Center would man-up against any center out there for the "best possible" trophy.

[GoPokes82sMom]

Your location preference is understandable, but The Children's Center would man-up against any center out there for the "best possible" trophy.

Okay, everybody, this may be the one and only time, so take a pic for prosperity. bleedorange, I agree with you 100%. :eek:

[GoPokes82sMom]

GP82 knows what he is talking about here. At least check it out Russell. My daughter-in-law, Matthew's wife, is a nurse there. She has been there for several years. She is a very caring and compassionate lady when it comes to the welfare and health of children.

[PokeNBeans]

Russell, I haven't posted but have been keeping up with all the updates. I have been praying for you and your family. I think you have done an outstanding job in staying calm during this entire ordeal. I can't imagine the strength it has taken to not break down to this point. You , Erin, and Aidan have all my blessings and continued prayers.

[okstatepike]

Tuba, I just hopped over to this board for the first time in weeks, and I want you to know that my thoughts and prayers will be with little Aidan for a long time... God can heal all things, physical and emotional and I will be praying for his healing power on your whole family. Be strong and keep up the faith - you all have plenty of people here who love you all!

[osutuba]

GP82 knows what he is talking about here. At least check it out Russell. My daughter-in-law, Matthew's wife, is a nurse there. She has been there for several years. She is a very caring and compassionate lady when it comes to the welfare and health of children.
I'll research it and see how it looks. We are going to look into each one and then make a decision based on a lot of different factors. All I can say right now is that Atlanta is leading, though we are looking into the available places here in NC other than Charlotte.

[osutuba]

I just posted this on my blog, but thought I would go ahead and post it here:

Tonight at 8:30PM Eastern Time we will hold a prayer vigil in Aidan's room. We will be praying fervently for the next half hour over Aidan for God to bring a miraculous healing to him.

We ask that if you are available during that time to please join us in agreement by praying with us.

Thank you for your continued prayers and support!

[Deepfork]

You are in my prayers!

[SeaOfOrange]

Hang in there Tuba. I haven't stopped praying. Be strong for that little guy. You're not out of the woods yet, and I understand that. I am so proud of you and Erin.

I remember when Erin went through her surgery, and then when she was pregnant with Aidan(or is it Aiden, I'm lazy about figuring out the spelling). I'm pretty sure that God doesn't care about the spelling when I pray. Now, fast forward to this day. It seems like yesterday from the old board.

You guys are doing great so far. I just hope and pray for the best. That's all we can do.

[GoPokes82sMom]

This evening's update:

Today, they tried again to back off Aidan's sedation. Erin said that he opened his eyes and even squeezed her and Mamaw Sinclair's hands. Unfortunately, he started getting agitated and ended up having several "episodes" before they decided to put him back on sedation.

We met with Dr. Cacerras (sorry, spelled his name wrong earlier) and asked him about the episodes. He said these were caused by his brain trying to wake up. More specifically, his autonomic nervous system was firing off and causing what equates to a sensory overload. He said that he has seen episodes like this before, but usually in older children rather than toddlers.

At this point, Dr. Cacerras is researching a drug to use the next time they start weaning the sedation that will help subside these episodes. The tentative date for this is later this week at the earliest, but could be as late as the end of next week. A lot depends on his response. Obviously, this is a very slow process.

On the rehab front, they have started to bring in occupational therapists to work on Aidan's arms/legs/feet/hands. They asked us to bring tennis shoes to put on his feet so they will not drop. Also, our social worker is looking into the rehab centers for us, though we have done a little research on some ourselves and we have also had recommendations for other centers (Memphis and OKC) from some of our friends.

My phone interview went well today. I will know about a second interview by the end of the week. I also got a call a little while ago for a face-to-face interview tomorrow at 2:30PM. This position is a short-term contract, but could run longer. Also, the pay is presumably better than I made at my last job ... a lot better. We'll see how that goes tomorrow.

[snuffy]

Tuba and family, hang in there, God isn't done by a long shot. The strength that you and your family have shown reflects your faith in him and he will take care of you all. My continued thoughts and prayers for your family and those taking care of all of you.

[MemphisPoke]

The first thread I open every time I get on.

Still thinking about you and yours and still praying. You and Erin hang in there.

[Verb]

I'm proud of how you're handling this, Russell. You've really been a tower of strength.

Please take care of yourself. Get enough sleep, eat well and try to get a little stress reduction time in. It's hard to be strong all the time.

And remind Erin to take good care of herself, too. There are two kids who need you guys at your best.

[osujane]

Blessings and continued prayers. Tuba, I hope you get a good job very soon. :)

[GoPokes82sMom]

This isn't an update, but a reflection from Russell. I cried because I could feel what he was feeling. I went through something similiar when good ol' OU/OSU DIVIDED FAN, Shari my daughter, ate a whole packet of birth control pills when she was about four. Sometimes I can still here the police ask where the DOA child was as the doctors were pumping her stomach and pumping her full of stuff to bring her back and stablize her. Russell, some of us have been there. Prayers still heading out to Aidan and the rest of you...the doctors are included in my prayers also.

Sorry, here's Russell:

emotion, memories, regret, soul, tragedy

Some of you may have seen or heard this phrase from me over the past week and a half and wonder what I mean by it. Allow me this opportunity to explain.

Many people equate the soul with feelings or emotions. Think of all the songs that mention the soul in this manner. For some reason, thinking of the soul makes the lyrics of the Billy Joel song "It's All About Soul" immediately come to mind:

It's all about soul
It's all about faith and a deeper devotion
It's all about soul
'Cause under the love is a stronger emotion
She's got to be strong
'Cause so many things gettin' out of control
Should drive her away
So why does she stay?
It's all about soul

Now, consider what happened that fateful Saturday, February 16. There are a million different emotions that are now forever associated with that sequence of events: anger, fear, hopelessness, distress, sadness, and likely many many more I have yet to discover. Consider how you felt when the worst moment of your life occurred. Now, multiply that by a significant number. How significant? I don't know ... maybe a googolplex? That is most likely how you would feel if your child ... your first-born ... your own personal miracle ... were suddenly in your arms and when you looked down, you saw death.

However, there's an interesting thing about emotions -- your soul, even. It can be suppressed. You can push aside those horrible feelings and focus on the positives happening amongst the tragedy (i.e., paramedics brought him back to life, vital signs are stable, reacts to stimuli, etc.).

Fast forward to this past Saturday. I was sitting alone in Aidan's room when the memories of that day started running through my head. Unfortunately, you cannot stop replaying the sequence of events when they start playing in your mind. As I relived diving in the water and flipping his lifeless body over to see lifeless eyes and ice blue lips, I couldn't hold back the tears.

So, go ahead and burn a memory into my soul ... I'll take a million and one of those over replaying that sequence of events in my mind's eye ever again. The sad thing is that it will always replay in those quiet moments when I look at my son and ask that dreaded question: "What If ...?".

[Erick]

Good luck on your job interview Russell. Our prayers continue to be with Adain and your family.

[osutuba]

Good luck on your job interview Russell. Our prayers continue to be with Adain and your family.
Strange thing about the interview ... it was less an interview and more an explanation of what my job responsibilities would be once I started the job. What that means, I have no clue.

[GoPokes82sMom]

Russell sounds like he is staying strong:

We were heading home today from the hospital and, as I stated previously, we have started to listen to the local Contemporary Christian radio station in the area. On the way, I heard two songs that gave me a sense of hope amidst all of the chaos that has been occurring.

The first song is a praise and worship song sung by the group Tree63. The song "Blessed Be The Name" talks about how in both good times and bad, we should continually praise God for what we have. Granted, there have been times it has been hard to praise Him; however, I am beginning to understand this more and more. Below are the lyrics:

Blessed be your name
In the land that is plentiful
Where the streams of abundance flow
Blessed be your name

Blessed be your name
When I'm found in the desert place
Though I walk through the wilderness
Blessed be your name

Every blessing you pour out,
I turn back to praise
When the darkness closes in, Lord
Still I will say...
Blessed be the name of the Lord
Blessed be your name
Blessed be the name of the Lord
Blessed be your glorious name

Blessed be your name
When the sun's shining down on me
When the world's all as it should be
Blessed be your name

Blessed be your name
On the road marked with suffering
Though there's pain in the offering
Blessed be your name

Every blessing you pour out,
I turn back to praise
When the darkness closes in, Lord
Still I will say...
Blessed be the name of the Lord
Blessed be your name
Blessed be the name of the Lord
Blessed be your glorious name

You give and take away
You give and take away
My heart will choose to say
Lord, Blessed be your name

The second song I head is by Mark Schultz. Now, I don't know why it is that his music seems to speak to me just when I need a message from God. Previously, his song "He's My Son" gave me assurance that he was watching over Aidan when I felt discouraged about his prognosis. It didn't hurt that Erin and I both heard it three times within a 24-hour period.

Maybe it is because he is a Tulsa, OK native and I pay attention more to music when I know the artist is from my home state (gives me that connection to OK when I am way out here in NC). Maybe it is because he presents his messages in such a beautiful manner with his lyrics. Whatever the case may be, I heard another of his songs tonight that gave me hope. The song is called "He Will Carry Me" and it is a very powerful song if you ever get the chance to hear it. It speaks of how when you are at your deepest point of despair and/or loneliness, you can call out to Him and he will be there for you.

I call, You hear me
I’ve lost it all
And it’s more than I can bear
I feel so empty

You’re strong
I’m weary
I’m holdin’ on
But I feel like givin’ in
But still You’re with me

chorus:
And even though I’m walkin’ through
The valley of the shadow
I will hold tight to the hand of Him
Whose love will comfort me
And when all hope is gone
And I’ve been wounded in the battle
He is all the strength that I will
Ever need
And He will carry me

I know I’m broken
But You alone
Can mend this heart of mine
You’re always with me

chorus

And even though I feel so lonely
Like I’ve never been before
You never said it would be easy
But You said you’d see me through
The storm

chorus

I can now with complete confidence and assurance say that I know God is with me and my family and that He will take care of us. We have to remain faithful to Him and continue praying that God will heal Aidan.

[GoPokes82sMom]

Strange thing about the interview ... it was less an interview and more an explanation of what my job responsibilities would be once I started the job. What that means, I have no clue.

Hopefully, that means they are going to hire you. Keep the faith.

[osutuba]

Hopefully, that means they are going to hire you. Keep the faith.That's what I am hoping for.

[orangeblood]

So how is Aidan doing today? Any changes, I really have a hard time reading anything else on the board right now. This is the thread I am looking for in the morning and before I leave work for the day! Hope all is well!

[GoPokes82sMom]

Aidan had another one of his "episodes", and this one lasted 2 hours! His pulse was as high as 280 at one point! Erin pushed the doctors to get the tracheostomy done ASAP, but they seem to be unconcerned, saying it may not be until Monday that they will be able to perform the procedure!

This is twice that his pulse has gone up to the 200 range that we are aware of. You can bet that I am keeping track of these and will be asking questions once he is out of the hospital and into rehab if we discover further problems or development delays.

[AnniePokely]

Aidan had another one of his "episodes", and this one lasted 2 hours! His pulse was as high as 280 at one point! Erin pushed the doctors to get the tracheostomy done ASAP, but they seem to be unconcerned, saying it may not be until Monday that they will be able to perform the procedure!

This is twice that his pulse has gone up to the 200 range that we are aware of. You can bet that I am keeping track of these and will be asking questions once he is out of the hospital and into rehab if we discover further problems or development delays.



Are you there with them?

[OSUFan]

We're still praying for you all! Hope to hear some good news.

[GoPokes82sMom]

Sorry for the delay in this update, but my day hasn't been very good. So far there is no follow up on the meeting with the doctors and nurses.

Here's all I have so far:

I'm just about to go into Aidan's room this morning, but decided to post regardign what happened last night. The Guest Wireless Access was down last night, which is why I am updating now.

Aidan is still having the occassional episode/storm, but none have come anywhere close to how the really bad one was yesterday morning/afternoon. In general, he is calming himself down, but they did have to give a bolus of sedative last night when I was in there with him. They are putting shoes on his feet to prevent them from falling. They are also waiting for splints to come in to put on his hands/arms so his wrists won't be permanently turned inward. They have also started turning him every couple of hours to help loosen anything in his lungs, as well as prevent hot spots and bed sores from forming.

I finally got to see him open his eyes on his own last night. It was kinda like watching someone wake up from a nap, but he didn't really respond when I tried to make him notice me (me and the nurse would try to put a hand over one of his eyes neither the other eye nor his head moved in response). Erin said he did this when she was in there, but she was able to get a response from him. Maybe he just wasn't as sedated previously.

At this time, the tracheostomy is scheduled for Monday. IMO, this is far later than it should be, but apparently this was the earliest the surgeon and the ENT Dr. could coordinate a time. This means watching him have these episodes over the weekend (ugh!) and hoping he doesn't have another really bad one. The nurse says that as long as they are able to get him successfully sedated, they have no reason to do the trach yet as an emergency procedure. Whatever. Here's an idea: How about sedating him as soon as his pulse gets over 180, not 3 hours later when it is over 200?!?!?!

Anyway, there is a meeting scheduled for 2PM this afternoon with all the Drs. and nurses so we can get all of our questions answered. I am going to try to record the session using my cell phone so I can thoroughly document the proceedings later

[AnniePokely]

So you don't think they are doing the best they can for Aidan, Russell? I thought by one of your first posts that this was a top of the line childrens hospital. If you don't think they are doing their job, as you think they should be doing it, go talk to patient services. They'll help you.


Since Dortha hasn't answered, is she there with you?

[Verb]

Annie, I'm pretty sure Dortha is getting this information from Russell's blog. I don't think she's there with them.

[bleedorange]

Annie, I'm pretty sure Dortha is getting this information from Russell's blog. I don't think she's there with them.

I think you're right. Sometimes it's a little confusing though. Here's the latest entry from his blog:

29th-Feb-2008 10:29 pm - Information from afternoon meeting

As I stated before in my most recent posting, we had a meeting this afternoon regarding where we stand and what's on deck for Aidan. At the meeting were Drs. Cacerras, Farerras, and Saad (surgeon), as well as a representative for our social worker and the Aidan's nurse at the time. Here is what I can remember from the meeting:

* They are doing everything they can to subside the storms by using various drugs. The goal is to get him off IV drugs and move to oral medications that can be given through the gastro tube.

* The 280 heart rate I mentioned previously is a result of a high heart rate + any motion Aidan is performing. If he is shaking/trembling and has a heart rate at 180, you can see how the heart rate could look like 280.

* The tracheostomy and gastrostomy are scheduled to be performed at 11AM Monday morning. Recovery time after surgery would be 2-3 days.

* There will be an MRI and MRS scheduled after recovery. This will tell what progress, if any, has occurred since the last scan.
People from the whichever rehab center we choose to go to will asses Aidan before he is transported so they can formulate a course of action.

Right now, Erin and I are focusing our rehab centers within NC. We really don't like the idea of "moving" out-of-state for Aidan's rehab. Therefore, we are considering Charlotte Rehab Center along with one other, WakeMed in Raleigh.

[GoPokes82sMom]

Thanks, for posting that, bleedorange. I really appreciate it. Here's the latest:

I did some research this evening regarding these "storms" that Aidan is having. Dr. Caceras has called the condition "Autonomic Dysfunction Syndrome." This is just one of several terms. Another name for it is Paroxysmal Autonomic Instabilitly with Dystonia (PAID) Syndrome. It's basically characterized by elevated temperature, elevated blood pressure, elevated heart rate, agitation, and posturing (rigid muscles).

There are several drugs that they can use to treat this and Aidan is currently on a combination of them. There is no set therapy and we just have to see how he reacts to what he is on. This syndrome could go away in a few weeks to months to even a year or so. We are praying that it goes away soon. The literature I found is mostly in medical journals and is very difficult to read so I'll save you the headache of having to read it.

From what I've read and from what I saw on his last MRI it looks as though there may actually be some amount of "damage" or decreased oxygenation to the mid-brain area which is the part of the brain that controls the heart rate, blood pressure, etc.

As far as long term, I'm not sure how this is going to affect Aidan's recovery. I'm praying for the best though. He is only 2 and his brain still has a lot of growing to do.

I can't even begin to tell you how much I miss him. It is so hard to go into the boys' room and see his empty bed and know that it could be up to 6 months or longer until he is able to sleep in it again. I want so badly to hold him and hear him say "hey" or even hear him cry. I won't be able to do that until they take the trach out. I miss his hugs and his kisses and being exhausted from telling him to get out of stuff he's not supposed to be into.

This is the hardest thing I've ever had to endure and I don't think I'd wish it on my worst enemy. I think right now the unknown is what is making this difficult for me. That and just the sheer amount of time that this is going to take.

[GoPokes82sMom]

Annie, I am not with them in NC. I am having enough of my own health problems right now. I try to copy/paste, as I promised Russell I would, as soon as I see them. Sometimes it's not updated until after midnight.

[AnniePokely]

Ohhhh, ok. I was wondering if you had gone down there.

[osutuba]

Annie, I am not with them in NC. I am having enough of my own health problems right now. I try to copy/paste, as I promised Russell I would, as soon as I see them. Sometimes it's not updated until after midnight.
Yeah, I had hoped to post updates a lot more often. Unfortunately, I have also been sick and it has taken a lot out of me (congestion, incessant coughing, etc.). It gets absolutely terrible after 6PM, so I am completely wasted by about 11PM. Also, everything has been pretty much status quo since Wednesday or so, so the need for constant updates hasn't been there.

[BobBarker]

Little one's heart rates can be much higher than adults. Over 180-200 isn't concerning at all.

[osutuba]

i'll keep that in mind

[jakeman]

Tuba, you stay strong cowboy. There are lots and lots of folks pulling for you and your little one.

Do what you can, make sure it's your best, and turn the rest over to God.

[GoPokes82sMom]

Ohhhh, ok. I was wondering if you had gone down there.

I almost did, but I needed to stay here to finish all these tests my doctor is running on me.

[osutuba]

I almost did, but I needed to stay here to finish all these tests my doctor is running on me.
Well, that would have been an unexpected surprise!

[cactusjack]

Continuing to stand in the gap for your little man, Russell.

We pray for healing!

[osutuba]

Thanks, Jack! As stated numerous times before, all of y'all's prayers and support are greatly appreciated.